Linda was frustrated when her engagement obligations interfered with work deadlines
Transcript
The negative aspects, depending on the project, has probably been in some cases the time commitment. [Pause] Yeah, I really think that’s – that’s it. Sometimes the amount of material that had to be reviewed, and the time commitment, sometimes, but not always, and not always in the projects that require that. It just depended. It might have interfered with a work deadline, and that was frustrating, so yeah.
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- Learning From Others – LindaLinda thinks about the experience of having cancer in a different way than she did before
- Challenging Experiences – LindaLinda felt left out of a conversation with researchers during a large national meeting
- Supports needed – LindaProjects move forward more constructively, according to Linda, when patients receive coaching to help them understand their role and expectations.
- Diversity – LindaEngaging with a broad range of people as partners, advises Linda, should be the goal
- Balancing time and commitments – LindaLinda was frustrated when her engagement obligations interfered with work deadlines
- Valuing contributions – LindaEven though Linda doesn’t expect compensation, she feels patients should be compensated in longer-term projects
- Relationship building – LindaWhere Linda had pleasant interactions with researchers, this led to positive partnership experiences
- Motivations – LindaFor personal and practical reasons, Linda has decided that she may not continue as a patient partner